Miracle Baby Born with Half a Heart Defies All Odds as Her Third Birthday Nears
Tinsley-Rose Sisson, lovingly called a “miracle baby,” has overcome extraordinary challenges to celebrate her upcoming third birthday. Born with half a heart and diagnosed with Turner syndrome, she continues to defy all expectations.
Her journey began during a 20-week ultrasound scan, when doctors discovered she had hypoplastic left heart syndrome (HLHS), a rare and life-threatening condition where the left side of the heart is underdeveloped. Her parents, Kenny Sisson and Jamie Pearce, from North Yorkshire, were told their daughter might not survive birth, but they chose to embrace the hope of even “just one day” with her, reported by the Manchester Evening News.
Tinsley-Rose was born on January 31, 2022, after a two-day labor at Leeds General Infirmary. Against the odds, she not only survived but has grown into a “bubbly, chatty, and cheeky” child who brings immense joy to her family.
“We’ve always called her a little miracle,” Kenny shared. “We were told she may only live for three days, and now she’s nearly three. We just take every day as it comes.”
Complications soon emerged, including a diagnosis of Turner syndrome, a genetic disorder affecting only females. This condition, combined with HLHS, has presented significant physical challenges for Tinsley-Rose, including stunted growth and limited mobility. Despite these hurdles, she enjoys life alongside her older brother Kenley, 11.
At 18 months, Tinsley-Rose underwent keyhole surgery to stretch a blocked artery. While the procedure extended her life, her condition requires ongoing care. The family is now exploring the possibility of a robotic valve to improve her heart’s function. The surgery, which could cost €12,000 (£9,900), might take place in Germany if deemed urgent.
“If we’re told she needs open-heart surgery urgently, I’ll be looking for us to get it done in Germany,” Kenny explained. “It will cost us money, but at the end of the day, it’s my daughter’s life.”
Despite her medical challenges, Tinsley-Rose is thriving. She is learning to talk, starting potty training, and exudes the playful energy of a typical toddler.
“She’s doing everything we didn’t expect her to do at this age,” Kenny said. “We want her to have a relatively normal childhood—maybe with a few difficulties along the way—but it’s something we’re ready for.”
The family is awaiting further tests later this month, which will determine the next steps in her care. For now, they cherish every moment with their little miracle.